top of page

Starting a home program

 

Please note that there are links to other websites on this page

 

Therapy room lay out

 

Useful list of materials and resources to help you start up

 

Points to consider before starting an ABA program:

1- Finding a qualified ABA consultant/organisation (registered BCBA) with good reliable references. If at all possible, research on ABA basics before your first meeting so you make the most of it. This page contains information which you might find useful. 

2- Talk to your consultant and plan all you need in advance so you stick to a realistic budget. 

3- By starting with the basics and introducing things slowly, you are better able to assess 'need' vs 'want'. 

4- Check quotes with different suppliers before purchasing items and services but also check for quality.

5- Visit another child's therapy room if you have the option.

6- Think about how you will structure your program; Establish the number of consultant run workshops per year, the frequency of team meetings, the number of sessions per week and the length of sessions before you advertise for tutors. A minimum of 2 sessions per week per tutor is recommended but this varies. 

7- Recruit your team; Seek advice before you advertise for therapists so you recruit the most efficient team for your child. Can they motivate your child to play? That's a good start. They also need to be able to grasp all the ABA scientific concepts and adapt as your child's program becomes more advanced. Training never ends and tutors will be constantly required to acquire new information! 

A template for an ad is available on this page.

7a- Are you recruiting volunteers or professional tutors? Depending on your budget, Psychology, Health and SEN education students are usually very keen to work for experience. I have had help from some amazing volunteers! You will be able to train them specifically to work with your child as they will learn on the job. You can get good replies from Gumtree, the Yahoo ABA UK community and autism facebook groups. 

If you are running an ABA VB program, professional tutors with a VB background should be an advantage but training on VB can also be provided on the job. 

7b- Give volunteers a few sessions before they/you can make your minds up, especially if they're used to doing respite or have no experience with intensive teaching. ABA principles and the intensity of sessions is not for everyone. 

7c- Try not to make a final decision at your first interview and give all potential tutors a chance over a period of time.

7d- Are you running your own sessions? Consider family/work balance and the impact it will have on you. But be reassured that things get easier as you learn more about ABA. It is a rewarding experience. Take all the help you can get! 

8- Consider looking for additional sources of funding such as Cerebra, Caudwell Children and Family Fund or set up fund raising events. Ask and you will get! You will meet amazing people and money will come from where you least expect. 

9- Consider overall costs: Initial assessment, initial training, setting up the therapy room/teaching space and discuss a plan of action with your consultant which is realistic to your budget. 

10- Consider who will supervise your program and be clear about your role. If you're keen to save money and learn the ropes to train your own team, invest in your own training also. Your tutors might not be able to stay for the duration of your child's program but you will always be there, learning more at each training workshop. 

10a- Don't be afraid to put yourself on the spot. You will learn ABA principles if you put your mind to it! Don't be put off by all the initial jargons and ask! Pair and contrive manding opportunities only means play, have fun and help your child request for what they want! It's not that hard once you translate it into every day language. :)

If you are not able to commit to doing regular sessions, then make the most of ABA consultant visits and training workshops and put the principles in practice whenever you can.

10b- In terms of hiring a supervisor, families work in different ways:

Some programs will promote existing tutors from their team to also work as supervisors. They might also share supervision with a carer. The advantage of doing this is that existing tutors are working with your child on a regular basis and recommendations from the consultant will filter directly into the team. If a tutor has no previous experience with supervising a program, this will offer them a career opportunity. This model helps maintain consistency with the program but the tutor will need to have experience in ABA and meet a criteria that you can discuss with them. Most ABA consultants will be able to discuss a basic job specification for a supervisor with you and you can flexibly adapt it to fit in with your situation. This is also cost effective.

For new teams where tutors have no ABA experience, some families hire an outside supervisor to work alongside the consultant, training tutors and applying recommendations in between consultant visits. They will usually visit to run team meetings, observe tutors and model teaching to your team by working directly with your child. This model works well when there's good communication with the consultant and when they work in a similar style. 

10c- Outside supervisors also work with experienced teams. This will depend on how the team is structured and supervisor arrangements vary according to the needs of a family.

Arrangements will also depend on the recommendations of the ABA consultant or organisation you're working with. 

10d- Some families have no supervisor but they have a lead therapist who takes on quite a few supervisor roles.

I've posted a visual representation of an ABA program structure in earlier posts. There are brief summaries on different roles there. 

11- Consider how you will record your data and evidence of your child's progress. There are data sheets for this and you can also video training sessions and your child working with consultant and tutors at workshops. 

 

12- Do what you can with as much as you can afford. Your child will benefit from ABA whatever your

circumstances are. The most important thing is to start it! Look for a flexible ABA consultant that can work within your budget. There are many out there who are keen to help.

 

 

Let me know if there's anything else you would like me to add to this list or amend to make it clearer. 

 

Please note that these points are based on my own experience and I hope you find this useful. 

 

ABA home program structure

 

For families making initial enquiries about ABA, the amount of new information can be overwhelming, especially if they know nothing of very little about ABA or autism before meeting professionals (my case).

I've found that this simple brainstorm has helped me explain the set up better to families. This is most applicable to home programs and it can be adapted but the idea is to provide families with an overview of what their options are. 

I started out with ABA, then did further research and addressed other interventions after I learnt all the basic theory and practice behind it. The ABLLs curriculum and ABA VB have covered quite a few Occupational Therapy and speech targets but we have the involvement of a specialist speech therapist and an NHS OT. Again, outside agency involvement depends on each child's needs so this overview is applicable to some families and not others. 

What is your role in your program?

Yayasan Baik's blog: How to start a home based program.

ABA program structure document by Autism-Aspergers digest

Recruiting therapists:


Gum Tree and the ABA Yahoo UK community are great places to post ads. People have advised me to try psychology department in universities but I have never had that much success with them. Worth a try in any case. My therapists have been recruited mainly from Gum tree and references from close contacts. 

Here's an example of an ad for volunteers

 

You will need to discuss number of hours per week with your consultant first :)

Starting on ***
Required – *** area
We are looking for volunteer enthusiastic Psychology/SEN Students to work with our *** yrs old child, diagnosed as Autism Spectrum Disorder (ASD).
We have set up an ABA home programme which will be starting in (month). This programme is based on 'Applied Behaviour Analysis' and the skillful use of positive reinforcement.

If you enjoy working with children and have got an interest in Special Needs Education, then this is the right opportunity for you. We will be running * hour sessions over * days per week and we would be recommending a minimum of 2 sessions a week per therapist.
ABA (Applied Behaviour Analysis) professional training will be provided throughout the programme by an established ABA consultant, therefore, experience in ABA is not essential. Reasonable travel expenses will also be covered and a clean Driving license would be desirable.
A DBS check and references will be required from successful candidates. If interested please send your C.V. to (e-mail address) or contact (name) on (phone number).

Resources budget

 

Is your your ABA resources budget concerning you?  Charity shops and car boot sales have great toys! 


Think about how much you are spending on cartridges and stationery. Look for offers on printer cartridges on-line from alternative places and visit bargain shops such as Poundland, the WHAT shop and Home Bargains (UK). I have bought great English and Maths books from a bargain shop for 69p each. Think twice before you buy from supermarkets unless they're offering price cuts. 

If you are shopping on-line stick to companies that offer free postage. You could be saving a lot of money that could go into your child's resources fund if you shop around. Look after your budget and pace yourself.

Making the most of your time with your service providers


Most people will agree that the initial stages of setting up an ABA home program as well as the ongoing running of it can be very rewarding but also stressful. One important point for us all to remember is that our ABA professionals are there for our children and that time with them needs to be structured in a way so that the child can make the most of it.

It is a good idea to organise yourself and what you will need to discuss so you can focus and use your ABA consultant's precious time efficiently. 

Remember that they come in with an agenda too and it is a good idea to update them beforehand on your overall program via a quick bullet point list e-mail a few days before they attend (if this is something they would be able to do) or have your points organised on the day. Be concise and write their feedback down so you can look at it more carefully another time. 

I structure my consultant update in different areas:
1- School
2- Home program (completed programs to show the consultant and queries on existing programs)
3- Behaviour
4- Other

Whenever something important crops up or receive an update/query from a tutor I write it down and compile an organised list at the end of the month, a few days before the workshop.

No matter how stressed you are, it is good for your child if you try and focus (it takes practice!).

An ABA program can take a lot of energy to organise. If you are home full time, try and take breaks from it to do other things, even if just go for a walk or the gym or meet a friend for coffee. If you are at work, take opportunities to chat about things other than ABA and go out with your partner/friends whenever possible. 

There are charities like the Red Cross that will be a listening ear for anyone who needs to chat and the NHS offers Cognitive Behaviour Therapy (CBT) to help us deal with the high levels of stress and anxiety that some of us go through. And of course your close family and friends are also an option.

The ABA professionals that have come our way have been fantastic and usually a listening ear. 

Most professionals appreciate being informed of aspects of our personal life that might affect the running of therapy and family balance. They have the hard task of not only supporting our children and our family but also giving us invaluable advice. 

It is common for us to not see things clearly when we become anxious and stressed and we need to recognise that this is a very delicate subject for professionals to address. It is also common for us not to realise how much time with professionals we are taking on 'us' rather than 'our child'. Therefore, from a carer's point of view I hope other Carers (and professionals) will find this advice helpful.

Keeping up with consultant recommendations

What do you do with all the feedback sheets from the consultant? It's easy to read them, discuss with the team and file them away.

I keep an 'actions' list with all recommendations and work systematically on them. We have a list of pending ones, completed and on hold (for whatever reason). I bring it out every month to workshops and add more/move over to completed as we work through them. We can look back and see how much we have got through as well. 

I have found this an efficient way to record our 'to do' list, prepare for discussions and not forget what has already been said. 

 

Always work with a qualified experienced ABA consultant

(BCBA or supervised BCaBA)

The expertise of a professional ABA consultant goes far beyond what you can download or find on the web. Where would our kids be without them? Thanks to all dedicated consultants out there! 

When words of others hurt

It can be very difficult for people without personal experience with special needs to start a conversation about the kids. I've struggled with people saying inappropriate lines for a while and I've found that no autism page has ever provided advice on how we can deal with them, apart from fans showing their outrage at what has been said by people who will never know better. 

Bear in mind that it is not personal and that as your confidence grows as a special needs parent/professional these lines will be like wasps in a warm Summer's day. They will come, annoy you a little bit but go. Don't muller over anything not worth your attention. 

I've heard all the lines below over and over for a few years. They do not bring me down any longer. They've been like vaccines. I've needed a dose every now and then to strengthen my immune system. 

No autism education or awareness will help here as this is too huge to tackle. They will never stop. 

It's great to just let go because you won't win this one. 

How much do they matter in any case? The people who really care and understand are the ones who really matter. 

Below are some of the questions/lines I've heard and some of the replies (in brackets) that I've used or wish I'd used but felt too shocked to do it (Or only thought of it days after). I honestly heard them all, a few repeated times and they stuck to my mind. 

You can read them and start strengthening your immune system too. Forgive people and let anger be replaced with a cheeky reply or a confident silence. There are battles that are more worth your effort. 

All my attempts to tackle these have not been worth it, I can tell you. 

One thing is great now, using ABA related replies to get out of situations. It's great to feel empowered and immune following wasted tears. 

Here we go:
- He is so cute. He doesn't even look autistic, he looks so normal? 
(What does autism look like? What is normal?)

- I don't know how you do it.
(Neither do I)

- Is your other child ok?
(She's ok and this one is ok too)

- Have another child and stop stressing about this one.
(I beg your pardon?)

- You need to look after yourself.
(Thanks for letting me know that I probably don't look the part)

- I have heard that dogs, horses and ... help autism.
(Have you heard of ABA VB?)
ABA what?

- All autistic children are...
(You're telling me...)

- Your life could be worse, I know another parent who is worse off than you.
(I haven't told you my life is bad)

- He might go to Harvard when he's older you never know
(Or Cambridge I'm not fussed)

- (my son is never invited to tea)
... So what are you planning for half term? 
(I meant that no one ever invites my child to play)
- ah but he's allergic, right? 
(Yes, he is)

- He is autistic but we love him
(...thanks)

- His sister speaks for him 
(Sigh..., yes she does but he can mand and has some emerging speech)

- He has a diagnosis, you can bring down your expectations now. 
(Have you heard of ABLLs or VB MAPP?)
Is that a charity? 

- All the years worrying about (child) Are you happier now?
(Can't one worry but still be happy? Oh no... I thought I was doing ok with worry+happy mix)

- Is he talking in long sentences yet?
(No, we have just started component composite and are half way through the H programs)

- He will always depend on you
(His sister told me she will look after him if she doesn't have to do ABA, we're sorted)

- Do you know what you will do when...
(No, do you?)

- Is he doing full time school yet?
(No, he's doing phased integration
, it's...)
Ahh, that's so interesting! 
(Yes, nice to catch up with you)

Become immune and strong and help others get back up.

ABA baseline assessments- who is supposed to do it?


When you take on a new ABA consultant for a new program, please ensure that you check that a baseline assessment will take place. This will ensure you have the evidence you will need of your child's progress and you will also know where you will start your intervention. 

If you are ever asked, as a carer, to fill in ABLLs without ever having any training, please bear in mind that you might not be doing as thorough a job as someone with the correct training. 

If funding for an assessment is an issue, think about delaying the actual start until a thorough assessment takes place. It is much better to start your program slowly and pay for an assessment first, than try to get ahead of yourself by doing it yourself (without the necessary knowledge). I have found webablls very useful as the criteria is clearly set there and there are videos of programs being done too. However, not all consultants use the same Sds or do them exactly like the videos from Webablls as some of them are really rote and the criteria is low. 

Check that your consultant has been certified by the BACB too as they will need to have gone through some steps in order to take the exam and receive their certification. References are key here too. 

I'm telling you one thing, I did an initial assessment and obtained my yearly WEBABLLs subscription at the start of my son's intervention. All as it should. It felt overwhelmed with the new information at the start, kind as my consultant was. It took me a good 6 months to a year for the whole thing to sink in and for me to be able to fill in the ablls grid. It might not be the same for everyone but I had supervisors training me and doing this with me at the very start until I felt confident enough to take it on. I knew 0 at the start of my son's intervention and I'm still learning every day.

ABA needs to be closely monitored and I've seen what happens when ABA is not used as it should with kids as well. 

**** I leave my word of caution to all parents thinking of starting out a program. Get as good and reliable references as possible before you sign up with a consultant to run your program ****

bottom of page